Neuseli Lamari
Neuseli Marino Lamari, physiotherapist, university professor at the Medical School of São José do Rio Preto (FAMERP) – Department of Neurological Sciences, Psychiatry and Medical Psychology. Master's and doctoral degrees in health sciences, associate professor of physiotherapy, advisor in three multiprofessional residency programs – FAMERP – Ministry of Education and Health.
Founder, member, and technical manager for 41 years of the Lamari Clinic, which is a reference center for Ehlers-Danlos syndromes and Hypermobility in Brazil. Member of Extended Working Group of the Brazilian Health Ministry for the drafting of Ordinance No. 199 of January 30th, 2014, which established the National Policy of Integral Care for People with Rare Diseases. Member of Extended Working Group Extended Working Group of the Brazilian Health Ministry for the drafting of the Guidelines for Comprehensive Health Care for Women with Disabilities and Reduced Mobility (2015 – 2016). Founder and organizer of international congresses on Hypermobility, Ehlers-Danlos Syndrome and Pain in 2013, 2015, 2017, 2021 and scheduled for 2024.
Cited in the book “Ehlers-Danlos: La maladie oubliée par la medícine” (published in France in 2018 by French physician Claude Hamonet) among the 12 professionals worldwide as a reference in the topic of hypermobility and Ehlers-Danlos syndromes. Cited in the book "Ehlers-Danlos Hipermovible Disautonomía y Fibromialgia" (published in Chile by rheumatologist Dr. Jaime Bravo), among the six pioneering professors in this disease. Author with Prof. Dr. Peter Beighton (medical geneticist – University of Cape Town - author of the Hypermobility assessment criteria) of the book "Hypermobility in Medical Practice." Springer Nature. 2023. Author of several national and international scientific articles. Speaker at various international congresses. Interviewed by the most-watched TV network in Brazil in 2015 and 2020 as a reference in hypermobility and Ehlers-Danlos syndrome.